Saturday, July 26, 2014

The Ultimatum - LIVER TRANSPLANT as soon as possible

“Our Dear Lord’s Strongest Soldiers,
on the Front Line of  a Great Battle” 

-Armed with Faith, Hope & Love-

The Ultimatum

(sadly TIME IS NOT ON OUR SIDE, To give you an overview of our endeavor; please before reading this message, kindly check the previews posts or the links below for further knowledge about the current situation. Thank you! 
)

http://alyssbrielle.blogspot.com/2014/07/july-62014.html
http://alyssbrielle.blogspot.com/2014/07/to-whom-it-may-concern-post-aborted.html
https://www.facebook.com/NissiDeppDelrosario


·         PROBLEM/DIAGNOSIS:
o   Biliary Atresia w/ Liver Cirrhosis (Signs of Portal Hypertension)

·         PROJECT:
o   A Life Extension Project

·         PROCEDURE:
o   Liver Transplantation

·         PLACE:
o   Overseas, possibly in HongKong, Singapore or Taiwan
§  These countries have expertise in Liver Transplantation procedures especially Taiwan, according to our contacts, a hospital there does liver transplantation procedures on babies atleast 3x a week.
§   Expertise & Experience result to a higher percentage of survival.


·         PROJECT COST:

o   Pre-Operation Procedures & Tests
§  Estimated P500, 000 to be done here in the Philippines.
o   Surgical Operation, Doctors Fee, Hospitalization
§  An estimated P5,000,000 – 6,000,000 (Five to Six Million Pesos) or
$100,000-130,000 (Seventy-Thousand to One Hundred Thousand U.S. Dollars)
o   Lifetime Maintenance
§   The patients who have undergone liver transplantation will need to take immunosuppressants (medicine of anti-rejection) for lifetime to prevent rejection of their liver. Regular checkup is also requested for liver transplant patient. In Taiwan, the estimated cost of monthly immunosuppressants and checkup is around NT. 15,000 to 20,000 (peso conversion x 1.5) P20,000 – 30,000.
·                                                                             POST OPERATION  OPEN-CLOSE OPERATION CHOLANGIOGRAM AND LIVER BIOPSY
                                                                   ABORTED EXCISION OF CHOLEDOCHAL CYST / BYPASS OPERATION- CHIEF SURGEON'S DECISION 

       TARGET DATE:

o   LAST QUARTER of 2014 – or AS SOON AS THE FUNDS are READY.

·         PROPONENT
o   ALYSS BRIELLE FRADEJAS DEL ROSARIO

§  Nissi B. del Rosario - Father
§  Jonalyn A. Fradejas - Mother

         In behalf of my family i write this plea, i'm Mr. Nissi B. del Rosario the father of Alyss Brielle F. del Rosario, an aspiring architect and a native Igorot from the Northern Tribe of Cordillera Mountains in the Philippines. 

            

         In as much as we want the LIVER TRANSPLANTATION to be done as soon as possible, my family don't have available cash,hence the move to start this Fundraising Campaign with your collective effort and help.  



            We Humbly & Sincerely ask for any kind of Help you may want to extend to us.
·         

o   Please contact us directly thru our Facebook or Email accounts
o   Or thru our CP#
§  +639-261172276
§  +639-173630137


·         Events'  Organizers / Fund Raising Activities

    I firmly believe what we don’t have individually can be achieved with numbers.  I have faith in the power of organizations and collective humanitarian efforts.

        To anyone out there who may be reading this letter, with the capability to help, support or share ideas with us. I sincerely ask for your time and assistance. Dedicated us we are, our network of friends and family is small yet is made of great hearts. We’ll do our best to cooperate on projects of your assistance.


o   Please contact us directly thru our Facebook or Email accounts
o   Or thru our CP#
§  +639-261172276
§  +639-173630134


·         Spiritual Support

         In behalf of my family, We believe we're made of more than flesh, we believe in spirituality; we believe in one God, the greatest physician, with whom all things are possible.


         We sincerely thank everyone who intercedes for us, May your continued prayers and faith bring miracle to every Life you touch. 


      As children of the Universal Architect, and chosen co-architects here on earth, It’s our responsibility to take care of every living and non-living thing. Brothers and sisters,  Deeply rooted are we in our being interconnected with each other. 

        We entrust everything to The Great Architect of the Universel. Amen.


·         Financial Support thru direct or indirect Cash donations:

Helpless as we are, we plea and humbly ask to all financially blessed persons, a wholeheartedly given donation of any amount. As parents, we promise to account and use every centavo/money for our daughter’s well-being, none of it will be put to waste.
Thank you and May God continue to shower His Blessings to you and your Family! Truly we believe, you’re a blessing to the needy.

o   Bank of the Philippine Islands, St. Lukes Branch, Quezon City, Phil.
o   Peso Account # 003893-0830-48
o   In the name of Alyss Brielle Fradejas del Rosario
o   CP#: +639-261172276

·         Note to our Family & Friends: Clans & Tribes

To our dearest Families,Relatives, and Friends, You've always been there, supporting us in every way you can, our backbone in times of struggle.
Your efforts and heartfelt support, always standing by our side in times of distress; your love and compassion is where we take our strength,keeping us afloat on rough waters of distress and dead ends.                                   


·         Note To HIM,
               We thank you O’ Lord for the Blessing of Life. In this great trial and test of faith in our life, a cleansing stage for our souls. 


           As a result of our sinful nature we had cast this curse upon ourselves. We repent and ask for your forgiveness for we have sinned. Believing in your great mercy that surpasses all knowledge, wisdom and understanding, this child, your gift to us, bless and heal her O’ Lord, allow her to continue her life on earth; we’ll do with you help, show her the beauty of your creation for all the rest of her life.



                 Lead us O’ Lord to our rightful path, re-design our broken plans.                 


            May Your Will be Done. Amen

From your faithful servant,
Nissi

TO WHOM IT MAY CONCERN: POST OPEN-CLOSE OPERATION, CHOLANGIOGRAM & LIVER BIOPSY (ABORTED EXCISION OF CHOLEDOCHAL CYST OR BYPASS OPERATION)

https://www.facebook.com/NissiDeppDelrosario/media_set?set=a.10202395856957019.1211000560&type=3
PLEASE CHECK THE DIRECT LINK TO MY FACEBOOK ACCOUNT



To whom it may concern,

July 9, 2014… at 6:00 p.m. Alyss Brielle del Rosario was admitted at St.Lukes Medical Center Quezon City. July 10, 2014… 5:00 p.m Alyss was brought to the Operating Room. After an hour or two, the surgeon told us what happened.

July 10, 2014… The operation supposed to be conducted was to excise the Cyst or By-pass of the common bile duct. The operation team cut-opened a part of her skin to have a visual knowledge of the actual situation inside Baby Alyss; So to make the decision on what to do next. Cholangioram (Dye test) was conducted (Injection of a dye inside the Gallbladder will show an image of the Bile Circulation/connection of the common Biliary duct from the Gallbladder to the Liver and to small intestine). The surgeons saw no connection at all. The liver is isolated, so is the gallbladder.(I’m not sure if it is a congenital anomaly, undeveloped part of the organ or a Cyst that blocks the connection or both). A liver biopsy was also conducted to know the current condition of the liver, which they saw shows signs of a cirrhotic liver. Henceforth the Chief Surgeon aborted the operation. They suggested a LIVER TRANSPLANT for the final cure immediately.

July 11,2014 St. Lukes representatives gave us a week to decide where we want the liver transplant be conducted…. St.Luke’s representatives said they have special programs to help our case which would cost around P5M (if we decide to do it here, this would be the first time an infant would undergo liver transplant in St.lukes Global)… but Hospitals in (P5-6M)Taiwan, Singapore, Hong Kong and United States have more experience in liver transplant operations. It’s up to us now to decide and as soon as the funds are ready. 

At present Baby Alyss is just like a lovely healthy baby (Weighing 6.1 kgs and 64cm) doing well if not for the yellowish pigment seen on her skin and eyes. Strong enough to be discharged from the hospital & responding well to medications after the surgery. :). 

In behalf of Aneohj Fradejas and our family. I would like extend our gratitude to every single support and prayers extended to us. Every inch of it is deeply appreciated; Truly, it makes the endeavor lighter.

For any help, message or donations you can extend to us,

please contact us directly through this numbers
+639-261172276 - Nissi B. del Rosario 
+639-173630134 - Jonalyn A. Fradejas 

or email us @
nissibdelrosario@gmail.com
jhoennaa10@gmail.com

For direct donations:
BPI St.Lukes Quezon City Phil. Peso Savings Account # 3893-0830-48 - Alyss Brielle Fradejas del Rosario or Nissi Baliang del Rosario 

May the Lord bless us all and may the Lord’s Will Be Done

HUMBLE PLEAD OF FAITH

https://www.facebook.com/NissiDeppDelrosario/media_set?set=a.10202364651536903&type=1


Alyss Brielle Fradejas del Rosario; our beloved angel was born on March 3, 2014 at Bontoc General Hospital, Bontoc Mt. Province. She looked pretty well that day; having pinkish white skin, red lips and wide bright eyes. Her newborn screening was also normal. Everything seems quite normal from that day on forward, then suddenly…

After 2 weeks, her skin darkened, and her eyes became yellowish; her poop turned pale-white and she became irritable. We thought it was just normal jaundice as experienced by majority of normal babies. But we were wrong.

As the days pass by, we got worried because her jaundice is not fading away. So we brought her to a Pediatrician. He then advised as to take some blood test together with liver function test and bilirubin count. The result was not what the pediatrician had been expecting. Worried about the result, the pediatrician recommended that we seek advice from a specialist doctor in Gastroentorology Pediatrics at Philippine Children Medical Center.

At the hospital, the Gastro-Pedia interviewed and asked a couple of details about our baby, then told us about the possible causes of our baby’s jaundice and pale-white poop. She then told us that our baby might be suffering from BILIARY ATRESIA OR HEPATITIS. (We had an idea that this is coming, for we googled and made some research about the possible cause of her yellowish skin and pale-white poop) 

For the doctor to conclude the disease, LIVER BIOPSY was conducted by their team of doctors. The result was devastating; Our Baby Alyss is suffering from BILIARY ATRESIA - a fatal, serious and rare liver disease that affects newborn infants (1 out of 15,000). At three months old, Baby Alyss’ liver and life is at great risk. Her disease is caused by his liver having blocked bile ducts. The bile ducts are the passage way for the bile to drain out of the liver into intestines for digesting food. As a result, the bile is trapped inside her liver; this caused her Cirrhosis. While the cause is still unknown, this disease is destroying her liver.

She was diagnosed with BILIARY ATRESIA WITH LIVER CIRRHOSIS June 20, 2014.




KASAI was no longer an advisable treatment as the surgical doctors’ told us that the chances are low, because Kasai treatment should have been done within 2-3months. Kasai surgery is a temporary solution for the liver to drain the bile and should have lengthened the time for us to generate funds. What a shattering news it is; the doctors’ told us that they can or will perform the operation if we insist. Listening to their advice and the risks, we decided that it would be better for our baby not to undergo the said procedure.

Last week of June 2014; We went to St. Lukes Medical Center, Quezon City for a second opinion. Knowing the previous diagnosis, The Doctor’s made some test to determine the disease affecting our daughter’s liver.

The impression was CHOLEDOCHAL CYST TYPE 1A OR TYPE 2. They immediately discussed to us their plan to EXCISE/REMOVE THE CHOLEDOCHAL CYST OR POSSIBLE BY-PASS SURGERY. The Operation must be done AS SOON AS POSSIBLE not later than next week (second week of July 2014) to prevent her liver from further damage. We humbly ask for your prayers for our Daughter’s Surgery. May our Almighty God’s will be done.



Contact us through this numbers: 
Nissi B. del Rosario-Father
+639-26-117-2276
email: nissibdelrosario@gmail.com
facebook account: Nissi Depp del Rosario
Jonalyn A. Fradejas-Mother
+639-17-363-0134
email: jhoeennaa10@yahoo.com
facebook account: Aneohj Fradejas
Alyss Brielle del Rosario
Facebook account: Alyss Brielle del Rosario






Helpless as we are, we plead and humbly ask to all financially blessed persons, a wholeheartedly given donation of any amount. As parents, we promise to dedicate each centavo for our daughter’s well-being; none of it will be put to waste.
Thank you and May God continue to shower His Blessings to you and your Family! I truly believe, you’re a blessing to the needy.

o   Bank of the Philippine Islands, St. Lukes Branch, Quezon City, Phil.
o   Peso Account # 003893-0830-48
o   In the name of Alyss Brielle Fradejas del Rosario


o   CP#: +639-261172276