Alyss Brielle Fradejas del Rosario; our beloved angel was born on March 3, 2014 at Bontoc General Hospital, Bontoc Mt. Province. She looked pretty well that day; having pinkish white skin, red lips and wide bright eyes. Her newborn screening was also normal. Everything seems quite normal from that day on forward, then suddenly…After 2 weeks, her skin darkened, and her eyes became yellowish; her poop turned pale-white and she became irritable. We thought it was just normal jaundice as experienced by majority of normal babies. But we were wrong.
As the days pass by, we got worried because her jaundice is not fading away. So we brought her to a Pediatrician. He then advised as to take some blood test together with liver function test and bilirubin count. The result was not what the pediatrician had been expecting. Worried about the result, the pediatrician recommended that we seek advice from a specialist doctor in Gastroentorology Pediatrics at Philippine Children Medical Center.
At the hospital, the Gastro-Pedia interviewed and asked a couple of details about our baby, then told us about the possible causes of our baby’s jaundice and pale-white poop. She then told us that our baby might be suffering from BILIARY ATRESIA OR HEPATITIS. (We had an idea that this is coming, for we googled and made some research about the possible cause of her yellowish skin and pale-white poop)
For the doctor to conclude the disease, LIVER BIOPSY was conducted by their team of doctors. The result was devastating; Our Baby Alyss is suffering from BILIARY ATRESIA - a fatal, serious and rare liver disease that affects newborn infants (1 out of 15,000). At three months old, Baby Alyss’ liver and life is at great risk. Her disease is caused by his liver having blocked bile ducts. The bile ducts are the passage way for the bile to drain out of the liver into intestines for digesting food. As a result, the bile is trapped inside her liver; this caused her Cirrhosis. While the cause is still unknown, this disease is destroying her liver.
She was diagnosed with BILIARY ATRESIA WITH LIVER CIRRHOSIS June 20, 2014.
KASAI was no longer an advisable treatment as the surgical doctors’ told us that the chances are low, because Kasai treatment should have been done within 2-3months. Kasai surgery is a temporary solution for the liver to drain the bile and should have lengthened the time for us to generate funds. What a shattering news it is; the doctors’ told us that they can or will perform the operation if we insist. Listening to their advice and the risks, we decided that it would be better for our baby not to undergo the said procedure.Last week of June 2014; We went to St. Lukes Medical Center, Quezon City for a second opinion. Knowing the previous diagnosis, The Doctor’s made some test to determine the disease affecting our daughter’s liver.
The impression was CHOLEDOCHAL CYST TYPE 1A OR TYPE 2. They immediately discussed to us their plan to EXCISE/REMOVE THE CHOLEDOCHAL CYST OR POSSIBLE BY-PASS SURGERY. The Operation must be done AS SOON AS POSSIBLE not later than next week (second week of July 2014) to prevent her liver from further damage. We humbly ask for your prayers for our Daughter’s Surgery. May our Almighty God’s will be done.
Contact us through this numbers:
Nissi B. del Rosario-Father
+639-26-117-2276
email: nissibdelrosario@gmail.com
facebook account: Nissi Depp del Rosario
Jonalyn A. Fradejas-Mother
+639-17-363-0134
email: jhoeennaa10@yahoo.com
facebook account: Aneohj Fradejas
Alyss Brielle del Rosario
Facebook account: Alyss Brielle del Rosario
Helpless as we are, we plead and humbly ask to all financially blessed persons, a wholeheartedly given donation of any amount. As parents, we promise to dedicate each centavo for our daughter’s well-being; none of it will be put to waste.
Thank you and May God continue to shower His Blessings to you and your Family! I truly believe, you’re a blessing to the needy.
o Bank of the Philippine Islands, St. Lukes Branch, Quezon City, Phil.
o Peso Account # 003893-0830-48
o In the name of Alyss Brielle Fradejas del Rosario
o CP#: +639-261172276
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